'Pillow angel' parents answer CNN's questions

The parents of "Ashley," who underwent a controversial therapy to stop her from growing, agreed to speak exclusively to CNN about their daughter's health, the controversy the therapy has engendered among disability advocates, the suicide of the doctor who pioneered the procedure and the future of more children like Ashley.

While her parents asked to remain anonymous to protect the family, they did answer CNN's questions about Ashley via e-mail.

does she have peers?

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We are in the unfortunate situation today where activists with political power and motivated by their ideology have successfully taken a potentially helpful option away from families whose pillow angels might benefit. (See this activism Web site. )

A collective agenda/ideology is being shoved down the throat of all individuals with disabilities, whether it serves them as individuals or not. This is disturbing in a society that believes strongly in the well-being of children and in individual rights. Pillow angels should not be deprived of this treatment when their parents and their doctors have carefully considered the options and concluded that it would be of benefit.

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